| Subject Overview: |
The subject will enable health professionals to develop and consolidate skills when caring for children with life limiting conditions. The course will explore palliative approaches to care, the diversity of diagnostic groups, symptom management, psychosocial and ethical issues for palliative children and their families.
Throughout the course work, students will have the opportunity to participate in a variety of teaching methods including; workshops, seminars, tutorials and role playing with much emphasis placed on adult /group learning and sharing.
This subject will consist of 5 teaching modules;
1. Evidence Based Palliative Care
Incorporating: Basics of quantitative and qualitative research, ethical issues, evaluation, quality activities, implementing research into practice and dissemination strategies (eg. presentations, publications etc).
2. Illnesses Encountered in Paediatric Palliative Care
Incorporating: General principles of paediatric palliative care. Malignant conditions, neurodegenerative conditions, chromosomal disorders and congenital anomalies
o What is paediatric palliative care?
o Disease groups – Malignant Vs Non-Maligant
o Differences between Paediatric and adult palliative care
o Best practices
o Transition to paediatric palliative care
o Myths
o Places of care
3. Symptom Management in Paediatric Palliative Care
Incorporating: assessment and management of children of varying ages with a range of diagnoses (including children with disabilities).
o Pain Management
o Respiratory Symptoms
o Neurological symptoms
o Fatigue
o Haematological
o Dying Process
4. Psychosocial and Spiritual Aspects
Incorporating: supporting children with life-limiting conditions, their siblings and parents and self-care for health professionals. Including bereavement care.
o Supporting the dying child,
o School
o Religious and Cultural Consideration
o Communication
o Grief – parental, sibling, grandparents
o School
o Funerals
o Creativity
o Sudden Death
o Self Care
5. Ethics
Incorporating: decision-making with children and/or their parents. Cultural influences.
o Autonomy
o Competence
o Decision Making
o Withdrawal of Treatment
o NFR orders
o Conflict
o Euthanasia
o Hydration & Nutrition
o Medical Ethics in Different Cultures |
| Objectives: |
Evidence Based Palliative Care
Explore the principles of evidence based practice
Identify symptoms often experienced by patients during the palliative phase of an illness
Explore current evidence based strategies for complex symptom management
Illnesses Encountered in Paediatric Palliative Care
Demonstrate an understanding of the epidemiology of paediatric palliative care.
Recognise the difference between adult palliative care versus paediatric
To understand the current definition and best practices in paediatric palliative care.
Symptom Management in Paediatric Palliative Care
To increase knowledge and skills in how to recognise and assess pain in children according to age and developmental stage including verbal and non-verbal cues.
To have an understanding of the therapeutic and complimentary options available for pain and other symptom management for infants, children and teenagers.
To enhance knowledge and skills in symptom control ( e.g. respiratory, vomiting, seizures)
To increase awareness of how the symptoms affect the child and family’s functioning.
Recognise the difference between palliative care and terminal care.
Develop knowledge & understanding of the terminal phases of palliative care.
Psychosocial and Spiritual Aspects
Recognise the psychological impact of the illness on the child and family.
Able to understand & articulate the importance of social, cultural and spiritual needs of palliative children & families.
To improve communication of health professionals with children with palliative care needs and their families.
Develop knowledge of current support services available for palliative children and their families.
Develop knowledge & understanding around the grief process & its impact on the child, parents, siblings, family members, friends & community supports such as school.
To improve knowledge and awareness of bereavement support in paediatrics
To understand the importance and impact of paediatric palliative care on self
Development of personal and team strategies for self care.
Ethics
Recognise the complexity of paediatric palliative care and the many ethical issues it encompasses.
To gain an understanding of the legislative frameworks which govern practice and accountability |
| Assessment: |
Assessment 1: Review & Critique a Clinical Issue (50%)
Word limit: 2,000 words.
Due two (2) weeks after completion of the teaching component
· Identify a palliative care clinical issue relevant to their practice and role.
· Review and critique the current literature and evidence base to guide practice relevant to the chosen issue.
· Include a minimum of five recent articles, with a critical discussion of the findings identified within the articles overall.
· The papers should be of varying methodologies and from different journals.
Assessment 2: Self-Directed Clinical Portfolio (50%)
Word limit: 3,000 words.
Due 6 weeks after completion of the teaching component
· Set of self directed clinically focused learning activities assessed by a clinical mentor
Students are required to complete one self directed clinically focused learning activity, in consultation with a clinical mentor. A clinical mentor will be assigned to each student. The portfolio activity should focus on an area of practice in which the student would like to improve their knowledge, skills and confidence. The activity should be a different topic to the one chosen for Assessment component 1 and is to be directly linked to enhancing the student’s capacity to practice at an advanced level. |